I was diagnosed with a form of arthritis in my mid 20s. It was debilitating and changed my life. Before, I would walk to work and home again almost every day, around three miles each way. Now, it was painful to walk and it took me ages to get anywhere. I reached the point where I thought I might have to give up working, I couldn’t lift my arms above my head, I could barely walk, I was constantly exhausted from the effort.
I wasn’t asked what mattered to me but after a year of suffering, I told the rheumatologist what I wanted for my future, how important it was for me to get outdoors, to be able to socialise and that I wanted a wife and family. He realised how badly the condition had affected me mentally as well as physically and suggested a stronger medication. It wasn’t without risks but had the potential to help me have the life I wanted.
I started on the new medication and took it for many years, luckily without negative side effects. It gave me my life back. I met my wife, I was able to walk, to dance, to lead a normal life without limits again. I no longer need the medication, and I do not go to appointments at the clinic.
Everyone wins when you ask, ‘What Matters to You?’